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‘Magic still exists’ – Dublin Marathon team Colin Farrell and Emma Fogarty raise over €775k so far for charity Debra

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Ms Fogarty, who is the longest-surviving person living with the rare condition epidermolysis bullosa (EB) in Ireland, joined the Hollywood actor for the final 4km of the race – one to mark each decade of her life.

Their initial target was €400,000, which they soon surpassed after a poignant appearance on the Late Late Show.

They set a new goal of €1 million and the pair have since raised €775,546 for Debra, which provides care and crucial supports for the 300 people in Ireland living with EB.

Ms Fogarty turned 40 this year despite the severe condition which is sometimes known as ‘Butterfly Skin’ due to how the skin can blister and break even through minor movement and touch.

It has a current life expectancy of 30 to 35 years, with Ms Fogarty eager to raise the crucial funds in order to ensure those with her condition are supported.

Both Ms Fogarty and Mr Farrell have criticised the Government for the limited support provided to the organisation before now.

Charity CEO Jimmy Fearon told RTÉ’s Morning Ireland that the role the two friends have played in raising the public awareness of the c charity is “unbelievable”.

“The Dublin Marathon is a magnificent event and it seems that on the sidelines everyone knew about Debra. Colin and Emma were flabbergasted by the level of support – and overjoyed,” he said.

“We have so many people to thank for this support and it just goes to show the kindness and the generosity and the support that’s out there from people to facilitate something magical to happen.

“It was magical, it was a really special day. Emma will never ever forget this day.”

He added: “Magic still exists.”

Mr Fearon said the funds raised will go towards supports such a nursing, counselling, care and bereavement support.

After crossing the finish line in four hours and six minutes of running through his home city yesterday, Farrell said: “I have known Emma for many years and she epitomises bravery, she is what courage and pure determination are all about.”

The 48-year-old Castleknock native said the run was “nothing compared to the pain she is forced to endure every single day, even though she doesn’t show it”.

“It was an honour to see her waiting for me with 4km to go, each of those representing a decade of her life, and to do the final stretch together. I’ll never forget it,” he said.

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