Actor Colin Farrell will run in the Dublin Marathon in honour of his close friend Emma Fogarty, the longest-surviving person with severe skin condition epidermolysis bullosa (EB).
Emma, from Abbeyleix, Co Laois, lives with 80 per cent of her body covered in bandages to prevent infections, a painful process requiring hours every second day. Emma’s parents were told she would not live beyond a week, but she reached her 40th birthday last month, having survived cancer twice in the interim.
To mark this significant milestone, the Oscar nominee agreed to participate in the marathon in October. Emma will join him for the final four kilometres in her wheelchair.
“He’s going to push me and each kilometre we do together represents a decade of the life I’ve lived and survived with EB,” Emma said.
Farrell described this milestone as a “miracle,” given the extraordinary challenges Emma has overcome.”
“Emma Fogarty is not only the strongest person I’ve ever met and a true warrior, I’m lucky enough to call her a friend,” said The Banshees of Inisherin star.
“For years now, I’ve been fortunate enough to bear witness not only to her courage and her vulnerability, but her humour, her stubbornness and her great, great heart too.
Farrell, set to star in next year’s “A Big Bold Beautiful Journey” alongside Margot Robbie and currently filming Netflix thriller “The Ballad of a Small Player,” will run the Irish Life Dublin Marathon in October as part of ‘Emma’s Run to 40′. Emma, who celebrated her birthday with a reception at Killashee Hotel and Spa in Kildare on July 23rd said they are aiming to raise €400,000 for Debra, the national charity supporting the 300 people living in Ireland with EB.
Emma endures the most severe form of the rare, genetic disease (recessive dystrophic EB), with a current life expectancy of 30-35 years. Known as ‘Butterfly Skin’, the condition causes excruciating blisters from the mildest touch.
“The doctors said it would be better for me not to make it, because my life would be so hard,” she said.
“No one expected me to survive for this long – because people with my type of EB almost never do – but I’ve always been encouraged to be a fighter. Reaching 40 shouldn’t be a miracle, but right now, it is.”
Funds raised through ‘Emma’s Run to 40′ will support research to improve life for those with EB in Ireland.
